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MultiDrug Resistant Tuberculosis: The Challenge of Adherence among Women in Uganda

In 2018, there were over 484,000 cases of MultiDrug Resistant Tuberculosis recorded around the world, which contributed to 44.21% of deaths caused by tuberculosis. Women diagnosed with MDR-TB are more vulnerable to low mental and social well-being than men, it is imperative that immediate action be taken to address the difficulties experienced by female patients as well as their support networks. This can be accomplished by putting emphasis on ’patient-centered care’, and a strong Primary Health Care system that is adequately facilitated would go a long way in ensuring efficient prevention and response to MDR-TB especially among women. 

By Christopher Ogwang

Christopher Ogwang

Multi-drug-resistant tuberculosis (MDR-TB) is a major public health hazard on a global scale. It is a kind of tuberculosis (TB) infection caused by bacteria that are resistant to treatment with at least two of the most powerful first-line anti-tuberculosis (anti-TB) medications. This is caused by non-adherence to the treatment regimen or poor prescription. In 2018, there were over 484,000 cases of MDR-TB recorded around the world, which contributed to 44.21% of deaths caused by tuberculosis. Over 62% of these instances were not treated, which is more than half. Noteworthy, the treatment of MDR-TB is much more expensive than the treatment of susceptible TB. In Uganda, various health challenges impede the scale-up of Drug-Resistant Tuberculosis treatment and care, treatment is either inadequate or lacking and in some cases, diagnosed patients delay on the treatment waiting list. Having one or more drug stock outs in health facilities treating susceptible TB was significantly associated with the risk of developing MDR-TB which has been noted as one of the factors contributing to poor outcomes and risk of developing drug-resistant TB, especially in rural communities. 

Women diagnosed with MDR-TB are more vulnerable to low mental and social well-being than men. Married women and women of childbearing age are most vulnerable to MDR-TB’s socio-economic, and mental health consequences, such as isolation, financial difficulties, and despair. Besides the intricacies and length of treatment, psychosocial difficulties frequently aggravate MDR-TB. It is essential to broaden patients’ access to psychotherapy and other forms of mental healthcare while they are undergoing treatment for MDR-TB.

The reproductive and parental roles of women and mothers compound the difficulties they already face in coping with, remaining adherent to, and ultimately benefiting from MDR-TB treatment. In most cases, a female patient is also a wife or mother who provides essential care for other members of her family, including those who also suffer from MDR-TB. Women have the social obligation to care for their sick children and spouses, but they may be denied even the most fundamental needs when they are ill themselves.

It is imperative that immediate action be taken to address the difficulties experienced by female patients as well as their support networks. This can be accomplished by putting emphasis on the requirement for ’patient-centered care’” and enhancing the services offered at local health facilities that are closer to the patients. This would cut indirect related costs associated with treatment that female patients may not be able to afford. This is critical because most women are incapable of maintaining adherence to the treatment regimen, yet worse when it comes to women in rural areas that mainly engage in unpaid care work and have no room to create and focus on income streams.

Along the therapy continuum, we need to emphasise  the significance of psychosocial stresses and social support as intermediary predictors for successful treatment results. To be able to ensure that female patients have a supportive environment to sustain adherence, families, patients and their family members should each receive the appropriate health information relevant to the condition and treatment plan in order to establish a support system that is both enabling and supportive. This is critical in sustaining adherence to treatment and care for Tuberculosis.

In addition, in order to improve the overall level of care provided, the screening for and treatment of mental health disorders should be incorporated in the national recommendations for the management of MDR-TB cases.

There is need to develop and implement a comprehensive mechanism for contact tracing of new tuberculosis cases and defaulters, implement an all-inclusive surveillance system such as the community awareness, screening, testing, prevention and treatment to combat TB. As evidenced from the work by the Center for Health, Human Rights and Development (CEHURD) contact tracing in northern Uganda, continuous tracing and reintegration into treatment saves lives not just of those who had dropped out of treatment but also the ones in their communities. A strong Primary Health Care system that is adequately facilitated would go a long way in ensuring efficient prevention and response to MDR-TB especially among women. 

The writer is a Senior Programme Officer at the Center for Health, Human Rights and Development (CEHURD).

World Population Day 2017: Promote Access to Safe and Voluntary Family Planning for Ugandans.

Today, Uganda joins the rest of the world to commemorate World Population Day under the theme “Family Planning: Empowering People, Developing Nations.”

Out of 7.5 billion people in the world, 34,634,650 million are Ugandans according to the Uganda National Population and Housing Census 2014. The country’s average annual population growth rate of 3% is attributed to the high fertility rate caused by inadequate access to safe and voluntary family planning for the people.

The high fertility rate in Uganda is thus evident of inadequate availability of a range of contraceptive methods, married with insufficient support from partners or communities, making it difficult for women to attain methods appropriate to their needs. A study by Center for Health, Human Rights and Development (CEHURD) on the status of the 13 UN Lifesaving Commodities in Uganda (2015-2016) indicated that while some of the reproductive health commodities (female condom, contraceptive implants such as Implanon Jadelle and the emergency contraceptive pills) were most available, others such as the female condom and the long term contraceptives were poorly available in less than 50% of the health facilities.

The high fertility rates in the country place emphasis on the need to increase provision and access to family planning commodities by scaling up efforts on provider training and consumer awareness about the commodities. This is in tandem with exerting price controls in the private sector to ensure family planning commodities are available, accessible, acceptable and are of good quality to all potential users.

Government should therefore invest in making family planning commodities and services readily available for those in need through developing programs that provide counselling, information and a wide range of contraceptive methods to yield economic growth and other gains that can boost sustainable development.

Access to information, Why it should matter for Communities.

Today information about the global community is continuously becoming more available yet the space to access information supposedly closer to us and about issues that affect us more directly becomes narrower and narrower. But just to what extent is one entitled to know about activities that go on in their backyard that significantly impact their livelihood when they have no proprietary rights in said activities. Human lives and health are significantly affected by the nature of their environment and the activities that are carried out in their environments and the government has through the National Environment Management Authority (NEMA) set up measures to ensure that the environment is not affected by any activities including by requiring impact assessments before such activities are carried out.

Read More Access to information, Why it should matter for Communities.

Safe delivery, a reverie for Uganda; Child theft at the peak.

By Nakibuuka Noor Musisi,

Until proper and well-coordinated systems are in place, safe delivery is likely to remain a dream in Uganda. When reports are made about child theft within health care systems, one can think they are just stories but the reality is true. Such happen. Many women have lost their new born babies in the health facilities; the cause of which is yet to be determined.

Just before the High court makes its pronunciation in a case instituted by CEHURD (CEHURD and others V. Executive Director of Mulago National Referral Hospital) on allegations of child theft, another case has again been reported of a lost child within the same health facility, and the only National referral Hospital, under similar circumstances.

Many questions remain unanswered when we see such happen in the country. Could this be the reason behind Uganda’s failure to achieve MDG 4 and 5? Why do children get lost in the facilities? Is it the system failure or it’s the problem of individual health workers that opt for money out of these new born babies? Will the maternal death rates be reduced at this rate of child theft? Are mothers safer to deliver in health facilities or within hands of traditional birth attendants? Such and many more remain unanswered.

It is indeed disturbing to see a mother who goes through the nine months of pregnancy suffer due to system failure.This was the case for Ms. Anyongire Lovis and Mr. Fred Sanyu. It is alleged that the couple was delivered of a beautiful brown fat bouncing baby girl on the night of 2nd January 2014. After a few minutes, the health workers took the baby away noting that she was ‘tired’. The demand to receive their child has since been in vain. They were only given a body of a dark skinned borny baby girl the following day and on refusal of that, another body that fits their description (of a brown fat baby girl) was given to them.

CEHURD has intervened in the matter, we have interviewed the family and hope to meet the administration of Mulago Hospital for further particulars as we collect evidence to institute a health and human rights related case on behalf of the family.

As we progress to advocate for safe motherhood and delivery, many factors have remained constant that ought to lead the country down. Its unfortunate that health facilities that are meant to be safe places for delivery are turning into a market place for new born babies. Such factors coupled with medicine stock outs, poor remuneration of health workers hinder and will continue to hinder safe delivery within the health care system unless addressed.

Why drag the case for this long? Judge questions State Attorney

By Nakibuuka Noor Musisi and Vivian Nakaliika.

 

Today the 12th of November 2014, CEHURD together with Michael Mubangizi and Jennifer Musimenta appeared before her Lordship, Justice Lydia Mugambe to address her on the case against Mulago National referral hospital and Attorney General (Civil suit No. 212 of 2014)

Read More Why drag the case for this long? Judge questions State Attorney